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| Read: Risk VERY VERY Small |
On the test that screened for over 200 potential genetic problems, we discovered that Nathan and I are each carriers for one disease. However, since it is not the same disease, the risk that we have an infected child is 1/4,400 (0.0227%) for one of the diseases and t 1/3,520 (0.0284%) for the other.
As for the other genetic test for Nathan, the results came back with a 90% chance that he doesn't have the disease. Combined with the fact that he doesn't meet the clinical criteria, the doctor felt pretty confident that he does not have it. However, he did say that they could be even more sure if they compared the results with a blood test from a family member.
Now, this is where I feel I really had a triumph over my OCD tendencies. Something I struggle with that is very common with OCD and anxiety is that I find it very hard to live with any doubt. OCD feeds on doubt, and so you want to be 100% sure of everything. This can lead to all sorts of unhealthy behaviors from checking and rechecking to unhealthily obsessing over horrible possibilities that have only a small remote chance of either being true or becoming true.
You have a feeling that somehow you will be on the wrong side of statistics. If there's a 97% chance that something is good, it is very easy for someone with OCD like mine to focus on that lingering 3%. The most ridiculous part is that this fixation on small chances and the feeling that the unlikely occurrence is sure to happen only acts up when considering improbable bad outcomes.
For example, if someone told me there was a 2% chance I would die tomorrow, I would be very uncomfortable. I would spend the whole day thinking I was going to hit that 2%. I wouldn't feel any safety in the 98% chance that I would be okay - I would feel doomed. But, if it was reversed and someone told me there was a 98% chance I would to die tomorrow, I wouldn't focus on the 2% chance of survival and feel a lot of hope. It isn't about a misunderstanding of how numbers or chances work as much as constantly fearing the worst while also expecting it as unavoidable.
But when we got these results, I was satisfied. The odds from the overall couples' screening were clearly astronomically small, but I even feel good about the 90% assurance on Nate's major test. I heard the results and didn't want to keep digging.
I know we can never with 100% certainty prove the negative. Even comparing the results to a family member's results, the doctor admits that they still could not make a 100% guarantee. The truth is that seeking any assurance higher than 90% won't really make me feel any safer. Starting a family means accepting a lot more risk in my life. I know by now that the OCD fears and worries aren't going to magically disappear, but accepting these results and feeling good about moving forward was a step in the right direction.
So, here's to moving forward even when you're only 90% sure. Sometimes, that's the best thing to do. :)
