5 Lessons From Getting COVID With OCD and Anxiety

After my fully-vaccinated husband got COVID in July and I didn't, I honestly thought I might never get the virus.  

My irrelevant negative rapid test. 
PCR came back positive.

However, as we've learned, COVID is full of surprises.  After learning of a potential exposure prior to Thanksgiving, I decided to get a PCR test to be safe even though I had no symptoms.  The email came just over 2 days later: Positive.

Tuesday was my only real day of symptoms: mild congestion and sneezes.   These also may have been due to the booster shot I received that Monday or dust from my office move... we will never know.  Since then, other than some random sneezes, my COVID has been invisible.  My anxiety and OCD, on the other hand, are here as usual if not exacerbated by this whole situation.  Here are five lessons that I've learned from this experience of processing a COVID diagnosis as someone with OCD and anxiety:

Lesson #1:  COVID Triggers OCD Differently in Different People

I've always been someone who has OCD worries about getting other people sick more than someone who has OCD worries about getting sick myself.  Have I considered the possibility that I could end up with bad health outcomes from this diagnosis?  Sure.  But I worry more about people who may have been exposed to me before I knew. There is so much fear surrounding COVID, and your OCD can take that fear in different directions depending on your unique themes. For people who incessantly worry about their own health, the worries could easily go in that direction instead.  People can also worry about how a diagnosis will disrupt their lives more than any health issue (How would I handle it with work?  Will I have to miss a trip/wedding?)  There isn't a one-size-fits-all way to worry about this. OCD can be creative!

Lesson #2:  OCD therapy can in some ways prepares you for calmer COVID risk analysis.

People with OCD and anxiety can often struggle with appropriate risk analysis.  Like I will turn off one electric power strip in my room before I leave the house on the extremely off-chance it would somehow overheat, catch fire and burn it down.  I am perfectly aware that's extremely unlikely to happen outside of a Final Destination movie, and there are other things I probably should worry about that I don't.  In therapy, I learned the technique of talking myself through some major fears to see that they weren't really as rational or likely as the panic originally lead me to feel.  This has been a helpful skill with COVID in many ways when trying not to spiral.  

For example, I have have a coworker who is particularly high risk, and it would be easy with my brain to panic that I was going to give him COVID and he could get really sick or even die.  However, thinking the risk through logically helps me realize that isn't a likely outcome (Examples of reasons not to expect the worst: Not everyone who is exposed gets it; Even people who live in the same house don't all get it; We are both double-vaccinated; As soon as I learned I was exposed, I masked up in the office; I hadn't been around him that much in the past week before my positive test; Even in at risk populations, not everyone with COVID gets extremely ill.)  Unfortunately, terrible outcomes have occurred with COVID, and we can't just throw caution to the wind, but for sanity it is important not to constantly jump to the worst case scenario. 

Lesson #3:  Coronavirus subreddits are like anxiety heroin.

Oh my gosh what a dangerous world Reddit can be if you have anxiety and it's hungry for doom to feed on.  Literally at any time of day, I can go on Reddit and go to r/Coronavirus and see articles about how we are all going down.  My anxiety is always looking for something to latch on to, and what better place could there be? Between the clickbait titles and the fatalist comment section, you can always find some information to confirm your worst nightmares have a chance of coming true.  Advice to myself and others like me: Stop checking this before bed. 

Lesson #4:  Following COVID guidelines can be a privilege.

My heart goes out to anyone with anxiety whose employer is writing their own rules.  I am very fortunate to have an employer who is letting me follow the guidelines set by the CDC and Ohio Department of Health, and also lucky that my husband can work remotely while he is in the window of concern, but I know that many other people are at the whims of their employer's policies right now.  

I have a friend who works at a school, and they are so understaffed that they aren't having employees quarantine even if someone in their house has COVID.  In Ohio, the guidance is always changing.  USA Today did an interesting article recently on how inconsistent policies are.  I can't even imagine how triggering that would be for someone with OCD concerns about getting other people sick.  

I was super fortunate that I could take this week off work unpaid, but not everyone can afford to or has an employer who would even give them the choice.  I guess the point of this lesson is to try to meet people where they are with what they can do and try not to add to the anxiety of a terrible situation by judging people who aren't able to follow current COVID guidelines to the letter. 

Lesson #5:  There is always someone more worried than you about COVID and always someone less worried.

I consider myself to be pretty considerate when it comes to COVID etiquette.  I got the PCR test when I learned of my exposure... I am staying home from work... I considered who I had seen the 48 hours before my test results came back and let them know so they could take care of themselves.  With my fears of getting other people sick, I even contacted someone I had seen in the past 72 hours prior to the test, just to be safe.  What I've learned is that there will still be people who feel that I am not doing everything I can and would do more.  

For example, I tested positive on a Sunday after learning of a potential exposure at an event the previous Wednesday.  Everyone at that event was notified via email of this potential exposure.  Relaying my story to a friend, she was shocked I didn't email everyone again to let them know that I later tested positive too. I explained to her that the event may have been where I got it and was over 72 hours prior to my positive test.  Emailing those already notified people again just didn't make sense to me by any of the guidelines.  For her comfort level, she still would have emailed.  

On the other end of the spectrum, some people I know are completely unvaccinated and don't really care about masking either or are outright against it.  Still others somewhere in the middle.  All of this uncertainty is extremely triggering if you have anxiety because sometimes it is often hard to know the "right" thing to do right now with changing guidelines as this evolves. In some ways, you just have to accept that your best is not going to be enough for some people and would be way overkill for others.  

What a wild time to be alive, yeah?  As my sister says, people have to do what gives them peace of mind.  I have heard other people say to give everyone a little extra grace right now, and that's something we can all work on.  But don't forget to include yourself in that group too!  

Sayonara, Seratraline!

 

Well, here we are again...

Sayonara, Seratraline!

In August 2019, I wrote a post about the surprises in transitioning off of my OCD/anxiety medication.  Then, almost a year later in June 2020, as the Coronavirus pandemic made even the most mentally stable of us feel uneasy, I wrote a post about the lessons I learned from getting back on.

Now, it's April 2021 and as of Sunday, I am officially back off my meds.  My husband and I had planned to start a family last spring, and now we are hoping to try in the fall.  After speaking to my psychiatrist, we decided that I was doing well and it was worth a shot to try getting back off again.  

Ideal Scenario:  I continue to do well, see my therapist and keep my stress low so that I can stay off of the medication through pregnancy.  I get more into meditation and learn how to be zen while transforming into the physical embodiment of Gaya, mother goddess.  Then, as soon as I have the baby, I will go immediately back on a pill that has been studied as safe for lactating mothers.  Going on right away should help with any postpartum depression and anxiety, which I feel fortunate I already know to look out for.

Potential Plan B:  I realize within the next few months that this isn't feasible and my stress levels and anxiety will be more dangerous for pregnancy than getting back on medicine.  Because I got off now, I have time to figure this out and get back on and stable before we try in the fall. 

Potential Plan C:  I do fine before pregnancy but have to get back on something during pregnancy because the hormones take me to a dark place.  I'm already in contact and have a relationship with my psychiatrist, and she has helped a lot of mothers who have safely delivered babies while on medication, so she is prepared to help me tackle any blips along the way.

I am open to any of these possibilities - the important thing is to plan ahead.  There's a lot of stigma around mental health medication, especially for pregnant women, but for those of us who need it, we realize how important and life changing it can be.  Nobody knows your personal circumstances, and how you handle pregnancy and medication should be between you, your doctor and your support system.

Let me end with the same disclaimer as in my June 2020 post: Remember: I'm not a doctor, and I can only speak from my experience.  Since elementary school, I've tried a number of different OCD/Anxiety medications (from Zoloft to Luvox to Viibryd, just to name a few).  Some have worked better for me than others.  The best thing you can do is is to find a good psychiatrist, advocate for your needs and keep an open mind.  During these difficult times, don't forget to take care of yourself.

Hope? Is that you?

I can't believe I haven't written since June, but I also can't believe it is March again already, and yet... here we are.

This was the year everyone got to learn what anxiety felt like, and those of us who already knew went into hyperdrive.  With so much unknown and so much pain and fear, the COVID-19 pandemic threw us all for a loop.

And then there was the news - accessible 24/7 on your TV and your phone. Always full of new information about death tolls and hospital capacities...  Graphs, charts and infographics of death and despair.  

Sometimes doesn't it feel like the people producing the news have been coached by your anxiety?  

Examples:

Hospitalizations are down in Place A!     They're on the rise in Place B.  

Good news about Vaccine A!  Here is what could go wrong with Vaccine A.

Numbers are trending down in this area!  Prepare for another surge.

Any good news always has a counterpoint - someone saying maybe things won't actually be okay.  There are always multiple people willing to voice the worst case scenarios and many acting like they are the most likely outcomes.  Sometimes, it's like your anxiety came to life and got on CNN and Facebook.

With the constant ability to access news, and the updates that appear unbidden on social media or through news alerts, this barrage can become like a physical manifestation of intrusive thoughts - unstoppable, negative and overwhelming.

Now we obviously have to take this pandemic seriously, but I think we have gotten to a place where it is safe to be... Dare I say it?  Cautiously optimistic.

Just today Biden announced that the timeline for availability has been pushed up and all adult Americans should be able to get a vaccine by the end of May.  And Johnson & Johnson hopes to manufacture a BILLION doses by 2022.

My mom was just able to schedule her vaccine.  My grandmother and two of my bosses have completed both shots.  Things are moving forward.

We all have to try and walk the line between staying necessarily informed and going down the rabbit hole of negative news.  When electronics are off, they're not very attractive to look at, but they're also less likely to intrude on your sense of peace.  

We still have to take steps to be safe, and the world won't be healed tomorrow, but there is light at the end of the tunnel.  Don't let the negative news cycle snuff that light out for you.  As we continue this pandemic marathon, I wish you all good health and inner peace.  

Back on OCD/Anxiety Meds - 6 Lessons

Off-Brand Zoloft!

It has been awhile since I've written, but let's be honest - Life is a little crazy right now for literally everyone.  The pandemic crisis is hard on everyone.  With major changes to social, professional, and family life, even without anxiety, it would be hard to process everything.

With OCD and anxiety, and off of my medication, things became unbearable.  Even before the civil unrest, I was struggling to cope with all the changes and the disappointments.  I quit my tutoring job and took on more hours at the appraisal firm I assist at, my husband and I decided to postpone our plans to start a family, I couldn't see my parents or friends like before, we couldn't go to Disney as planned... I was crying. A lot.  My anxiety was skyrocketing, and I was feeling depression and hopelessness.

So, after discussing how I was feeling with my therapist, it was clear that it was time to call the psychiatrist and admit that I needed some more help.  Here are 5 lessons I've learned getting back on OCD/Anxiety Meds:

1) It doesn't mean you have failed if you need to get back on medicine.

I was off my medicine for almost a year, and up until the COVID-19 crisis, I was actually doing pretty well.  I delayed getting back on the medicine because I couldn't help feeling like I was failing.  I wanted to be able to just suck it up.  I would never judge anyone else for being on medication, but it was hard to practice what I preach.  However, I ultimately was able to rationalize that getting a little help from medicine during one of the most stressful periods my generation has ever faced was nothing to feel shame about.  Also, I'm able to be on a much lower dose than before.  Small victories! 

2) It is okay to take things a day at a time.

One of the reasons I got off of medication in the first place is that I want to be off meds for pregnancy if possible, or at least on something that is safer than the meds I was on before.  Another reason I delayed getting back on medicine was the feeling that I was making a long term decision and worrying about pregnancy.  

However, with COVID-19, our plans to start a family have been postponed at least a year.  Worrying about it now is really getting ahead of myself (which my anxiety makes me fantastic at!).  My therapist and psychiatrist both assured me that I could taper off again later if I was feeling better, and my psychiatrist started me on something that is better tested for pregnancy in case I still need to stay on it.  

3) Something that didn't work years ago may work better now.

When I was in high school, Zoloft worked great for me for years.  At one point, I switched from brand name to generic Zoloft and it was a hot mess: lots of sadness and crying.  I switched back to Zoloft, but then when I stopped taking it for a bit, it didn't really work the same when I tried to get back on.  

When my psychiatrist suggested trying Zoloft again (now approximately a decade later), I was skeptical and I was even more skeptical when I realized I got the generic.  However, I'm glad I didn't close myself off to it because its actually working really well now at a fraction of my former dosage.  Mental health meds are weird. 

4) Side effects are real, but some do taper off!

Even on a dose that is at least a quarter what I've taken in the past, I still experienced some side effects when I started.  The first couple of days, I can only describe feeling WEIRD.  It just felt like something was wrong.  Then, like I've experienced when messing with my OCD meds before, my period was thrown off a bit.  However, there was also something very new: I started to have insomnia (the opposite of my norm!).  The good news is that after a couple of months, the insomnia has really tapered off and things seem to be regulating back to normal. 

5) You can't medicate away a global crisis.

Maybe this is obvious, but it's also important:  everyone is feeling anxiety right now.  COVID-19 is scary because of the unknowns - and that is what anxiety feeds on. My therapist has reminded me that everyone is struggling right now. With other crises also dominating the news cycle, from racial injustice to unemployment, it would actually be a little concerning if you weren't feeling anxious.  Medicine can help you get by, but it won't make these stressors completely disappear.

5) Adjusting to medication can be like effective dieting - the gradual changes do add up.

When you get on an SSRI like Zoloft, it isn't like an immediate change after the first dose.  However, when you find the right pill, you do slowly improve.  It really is like losing weight... you won't notice a major change night to night, but one day your brain just fits better.  I wanted to quit at first because all I felt were the side effects without feeling a benefit.  Now, a couple months out, I'm  really glad I trusted the process.

Remember: I'm not a doctor, and I can only speak from my experience.  Since elementary school, I've tried a number of different OCD/Anxiety medications (from Zoloft to Luvox to Viibryd, just to name a few).  Some have worked better for me than others.  The best thing you can do is is to find a good psychiatrist, advocate for your needs and keep an open mind.  During these difficult times, don't forget to take care of yourself.

Indirect Coronavirus Fears

Please let me go to the one place
I can thrive in a fanny pack.

So, I saw someone posted an article about OCD and the Coronavirus panic.  Obviously for anyone with health related OCD worries, this is a nightmare.  Germs! Contagion! Death! The media is constantly fanning the flames of fear that these people are already very capable of fanning on their own. 

But I'm not a person with health related OCD.  I am 30 years old and in good health.  I survived a bout with the flu a couple weeks ago!  I live by multiple world class hospital systems (Go Cleveland!) and am lucky enough to have good insurance should I need care.  If I get the Coronavirus, I have a feeling I'll be in the 97% that make it.

Does this mean that my OCD isn't getting exacerbated by this pandemic scare?

Of course not!

Even though I am not worried about personally dying from Coronavirus, as someone with OCD and anxiety, there are many indirect ways I am panicking about Coronavirus.

The main issue is that at the end of April, my parents have planned a beautiful trip to Disney World and Universal Studios.  It will be my husband's first time there.  It will be my last time there as a free adult before I try to start a family of my own.  We have meals planned and every day charted out for maximum enjoyment.

What if we get sick and can't go?  What if the virus causes them to shut down the park?  

Now, I recognize that it is super bratty and privileged when people are dying to worry about your vacation.  But before you write me off as the most selfish person on the planet, please also know that an additional fear that I have is that I will get Coronavirus and then infect someone else who then dies because of me.

I'm already worrying about how I will be worrying right before the vacation about getting sick.  Again, I am not worried about personally dying from this, and I'm not normally someone who lets a little cold stop me from doing what I normally do... but because of this virus scare I know if I have any little cough or throat scratch, I will start catastrophizing.   Any possible sign that I have caught Coronavirus will send me in a tailspin wondering if I should stay home to save the immunocompromised from my infection.

I have been doing what any unstable worrier does in 2020 and have been googling terms from "Coronavirus" and "Coronavirus Florida" to "Coronavirus Disney."  Of course, there are no good answers, and there isn't any way to know how things play out over the next few weeks.  

I am going to have to fight my nature not to get sucked into the media's panic and just try to look forward to the trip.  Now will just be a chance to practice that serenity prayer and accept the things I cannot change.  As they say, "Que sera sera."

Electric Worries

Unfortunately, my OCD has gotten much worse lately.  

As with any chronic mental health problem, there are bound to be ebbs and flows through life.  What is particularly interesting to me though is the way that obsessions and compulsions can shift focus.

Lately, I've been worried a lot more about electrical fires.  

I can't imagine why this specific fear would come alive now any more than at any other time, but here we are.  When I'm leaving the house, I sometimes get major anxiety that some Final Destination style nightmare will occur while I'm gone... The thought process goes something like this:

If you left your lamp or computer plugged in, even if it's off, what if somehow it creates a spark that starts a fire?  What if the fire spreads through the house?  What if then nobody realizes the dogs are in their crates and nobody gets to them in time? 

or...

What if the computer is plugged in and was left on the couch?  What if then it overheats and that starts a fire? What if the fire spreads through the house?  What if then nobody realizes the dogs are in their crates and nobody gets to them in time? 

or...

What if the drier was left on?  What if then it overheats and sets the clothes on fire? What if the fire spreads through the house?  What if then nobody realizes the dogs are in their crates and nobody gets to them in time? 

I am aware that none of these worries make any statistical sense.  Even if you can find articles on the internet where these unfortunate scenarios occurred, many people every day keep their electric devices plugged in and leave the house without burning down their homes.  

Logically, I understand that these fears are overblown.  Unfortunately, that won't stop me from worrying or checking, unplugging, and turning things off.

All these multi-step disaster scenarios stem from the same fear: something I do or neglect to do is going to kill my precious dogs.  Even if there is only a .001% chance of some horrible event occurring, that event is so horrible to me that the compulsion to check to unplug or make sure an adapter is turned off often prevails over rational thinking.

Sometimes it is great love that leads otherwise rational people to do seemingly irrational things.  I know I need to get a grip, but it helps to see and understand where the behavior is coming from.  

My advice for today is to look at your compulsions or the compulsions of someone you care about from a different perspective.  Rather than just seeing an OCD behavior as a brain glitch, try to consider the root of it.  Even if the behavior seems "crazy" at first, often the root of it is very relatable.  Understanding this can help you have better compassion for yourself and others.

Wherever you are with your OCD journey, trying to maintain compassion for yourself is key.  One day at a time, y'all.  We got this.

I'm Not Finishing This Book: Toxic Perfectionism Challenge

Growing up, I never read a lot outside of school because reading gave me a lot of anxiety.  

It was okay. 🤷🏻‍♀️

I would worry when I was assigned something to read that I hadn't read it completely or correctly.  I developed the compulsion to re-read and re-read because I was so concerned that I was lying about having read the assignment.  

To say I had actually done the reading, I felt like I had to carefully read every word.  At least once, my re-reading got so bad that I had to have my mom read out loud to me just so I could get through the assigned chapters.

As an adult, even as an English tutor, I'm rarely forced to read things anymore. I've actually gotten to enjoy reading some books for fun!  The lying concern doesn't have to play a role in pleasure reading.  However, I still can fall plague to this sense of toxic perfectionism in other ways.  

Even though nobody is giving me assignments anymore, I am currently feeling a sense of commitment to finish a book I have started.  I can think of a few books from the past that I quit, but this is a weird quirk issue that has become a problem recently. 

Probably over a year ago now, I started reading The Night Stalker by Philip Carlo.  I am a true crime fan, and I got through the beginning of the book pretty quickly.  The story is very interesting and the book is well written... but I ultimately became super disinterested during the long trial section.  I like reading about trials normally, but the way this one is presented, it just seems to drag on and on.  I'm on Page 340 of 447 and the idea of 100 more pages just seems like torture.

So, instead of quitting the book like a normal person, I've just gone back to not reading for fun.  I let the book sit in my nightstand. I brought it on a recent weekend getaway and carried its heavy weight in my bag.  On a random night, I might read a few pages, kidding myself that I'm finally going to finish...but I'm not even connected to the story at this point.  I don't remember who is who anymore.  So, night after night, the book waits.

During my The Night Stalker imprisonment, I did read a novel assigned at the college where I tutor (because I had to), but I haven't been able to do any pleasure reading.  There are other books that I actually want to read, but I haven't been able to because I am in the middle of this one.  I'm committed. I have a duty. 

This is nuts!

So, tonight, I'm going to start reading a different book.  Life is too short to be held back by some vague sense of anxiety disguised as something more honorable like dedication.  Not everything must be perfectly executed.  Not everything deserves your time and energy.  I will triumph over The Night Stalker.  

I hope that as you move into the new year, you can also find ways to leave behind any useless sense of obligation you have to the insignificant trivialities that anchor you down.  Here's to starting a new chapter. 💗

Practicing Gratitude

My heroes.

One of the best exercises my therapist recommended to me was a fairly simple one:  Take time every day to think about what you're thankful for.

It's a nice way to get out of your negative headspace.  Sometimes it's so easy to focus on the negative: on the mean things people have said, on the work that isn't done, on the goals that aren't being met.  Whether it's anxiety or depression (or both) getting you down, when you're in a negative tailspin, it's hard to remember how much is actually going right.  

Some days are easier than others.  Any day you see a puppy in a costume is an easy day to think of joy.  Holidays and special events are easy too.  But even on a bad day, there are still small silver linings if you look for them.  On the days that are the hardest and saddest, it still helps to try and pull a few tiny pieces of positive out of the muck.

Some people write a gratitude journal, but I hate seeing my own handwriting.  I knew if I tried a journal I would just avoid the exercise rather than look at my chicken scratch.  Instead, I pulled my husband in for accountability and we do the exercise verbally, each taking turns saying three things we are grateful for each day before we go to bed.

The exercise has shown me how small changes can make a difference.  At first, it seemed like a silly, throw away exercise, but actively taking the time to concretely verbalize the positive really does help lift my mood.  Bedtime is a particularly anxious time, and it's nice to end the day on a good note.

I also think sharing the exercise has made it even better.  Sometimes my husband and I share the same highs, and sometimes they're different.  It's fun to see day to day what stands out to each of us.

Whether you suffer from anxiety or not, I recommend throwing this into your routine.  If you like to write, write them out.  If you prefer to type, type them.  Share the exercise with your spouse or your child.  If you live alone,  I still think it might be a fun exercise to share with a friend - promise to text each other each night with your top three moments.

With exercises like this, I think the most important thing to keep in mind is not to get down on yourself if you fall off the wagon.  Forgetting for a night, a week, or even a month doesn't mean you have to abandon the process.  Every attempt is a triumph - an active step away from toxic negativity.  If you slip up, you can always try again tomorrow.  This is one assignment that won't be graded, and that's just one more thing to be grateful for.

Inaccurate Perceptions

My vision is bad, but my perception is worse.

Early last week I left my tutoring job feeling like a failure.

There was a student who I was struggling to communicate with.  She at one point even directly asked, "Do you understand what I'm saying?"

I didn't really.  I tried to help the best I could, and by the end I thought we were on better footing, but I still left feeling very inadequate and like this woman thought I was a moron.

I told both my husband and mom about how I was feeling.  On Monday, I decided to tell my supervisor about the interaction.  She knew exactly the person I was talking about and told me she had showed up later that week: "She said you were wonderful."

Wonderful?  What?

I was worried she might lodge a complaint.  How had my anxiety caused me to read the situation so inaccurately?

When I messaged my husband about it, he sarcastically feigned shock, replying, "What!?!?! You inaccurately assigned negative aspects to an interaction?!?!?!"

Seriously, though. I've always struggled with this negative voice in my head tearing me down and it has gotten worse lately. Worse enough that my therapist brought it up as a point of concern.

But like... where did this bitch inside my head come from?

I hear her multiple times a day...

You're worthless. You're dumb. You're ugly.
You're old. You're annoying. You're a hypocrite.
You're lazy. You're incompetent. You can't do this.

As I've mentioned before, I had a very blessed childhood. My parents were very supportive and positive. They always told me that I was pretty and smart and funny and good. It's not like my inner voice is replaying ridicule I experienced as a child... so why is my inner voice such a Negative Nancy?

Unfortunately, I'm not sure I'll ever know the answer. From a pragmatic standpoint, it is probably better to focus instead on how to shut her up.

Challenging that voice sometimes feels like trying to see without glasses: Even though from a logical standpoint I know that I'm not seeing clearly, it's hard to ignore the distorted visions in front of me.

But what do you do when you can't see? You use tools to help you.

For actual vision, you get glasses or contact, but for correcting overly negative perceptions, you go to therapy for tools in your mind. The tools may not be as concrete, but learning new ways of thinking can help clear things up.

One of the tools I still need to practice is actually just questioning and considering alternative readings of different situations. Rather than go down the rabbit hole of negativity, I have to question the legitimacy of my negative thoughts, consider different interpretations, and acknowledge the unlikelihood that everything will default to a worst case scenario.

I can't just accept my initial assumptions, because I know my tendency is to go off the deep end into the pool of negativity. But like any change, reprogramming isn't easy.

As usual, it looks like this will be a one-step-at-a-time, definitely-not-overnight path to healing. So, time to put one foot in front of the other and get moving - especially as the voice says I can't.

Four Surprises in Transitioning off My OCD Medication

Bii for now Viibryd!

With Luke and Lily as our puppies, we already have a family.  My heart is full, but my husband and I would still like to have human children someday.  The medication that I was on for OCD is not generally considered safe for pregnancy, so something had to change before we could move forward.

I found a psychiatrist with fertility experience, and through discussions with her and weighing pros and cons, we agreed I would try going off of my medication.  

This has been a big step for me.  I started on Zoloft when I was in grade school.  I've switched medications around a number of times since then, but I've almost always been on something.  The few times I have been off meds, it hasn't gone well - everything inevitably crashes, and I end up going back on pills.

I've had psychiatrists and therapists tell me that I might never be able to go without medication.  I've also been warned that sometimes when you have an anxiety disorder, your natural anxiety levels can get so high that they can prevent you from getting pregnant or cause issues for the baby.  In some cases, it is actually safer for mom and baby if the pregnant woman is on something, provided the medication is approved for pregnancy and everything is overseen by a doctor throughout.  

The pill I had been on the past few years was a relatively newer brand without much research in terms of pregnancy. Since I would have to transition to something else anyway, and since I had been pretty stable for awhile, my doctor and therapist agreed that I would try going "clean."  This way, I have some time to feel it out before we start family planning.  Ultimately, if it doesn't work, I'll get back on something that the doctor approves for pregnancy.

I have been off of the pills for a few months now.  It has not been easy, but it also has gone much smoother than previous attempts.  That said, here are the four biggest surprises so far:


1.  Life has become an emotional roller coaster.

The highs are higher and the lows are lower.  Small setbacks can send me crashing down and feeling hopeless, but one good day can offset a week of the blues.  For better and for worse, every emotion just seems to be hitting at a higher level.

2.  Sometimes declines are unconscious.

Have you ever put on 10 pounds?  You don't notice it as it comes on a half pound at a time, and then one day you realize your pants don't fit.  My OCD symptoms have similarly snuck up on me.  For example, I didn't really feel my reassurance seeking behaviors and intrusive thoughts increasing day by day.  However, I realize now that they are considerably worse than before and it is something I will need to keep an eye on personally and in therapy.

3.  The anxiety and depression increased more than the OCD symptoms.

I was worried about my OCD getting out of line, but it is actually the anxiety and depression that have been the bigger bullies now that the medicine is gone.  Something as simple as balancing my schedule can seem overwhelmingly daunting, and I am constantly jumping to worst case scenarios in my head.  I wake up many mornings with a sense of dread completely unrelated to any intrusive thought.  So far, this generalized anxiety has been one of the toughest things to battle.

4.  It threw off my cycle.

I had no idea that getting off my medication would have an effect on the timing of my periods.  For a few months, I felt like I was getting my period every couple of weeks.  It wasn't until I went to the gynecologist that he explained that psychotropic medication changes can throw off your cycle because it is your brain that tells your body when to have a period (makes sense!).  To be safe, he did some tests, but everything else looks fine.  Luckily, he told me it should balance out, and this last month my timing seems to be returning to normal.


I'm about four months out now, and I just have to continue to take it a day at a time.  Maybe I will find a way to successfully use the tools from therapy to manage my symptoms on my own.  Maybe I will have to go back on some sort of medication.  For anyone out there on meds right now, there is no shame in needing medication.  Just like any other illness, you prefer not to have to remember a pill every day or worry about side effects, but if you need the pills you take them.  If going back on is what is best for me and my potential offspring, so be it.  But for now, Laura's Adventures in Brain Chemistry will continue.  Onward and (hopefully) upward!

When You Forget What's Troubling You

Sometimes I have a disturbing or terrible thought and I can fixate on it until it balloons and spirals.  I mean, that's the O in OCD right?  I obsess over things, and I worry and I hem and I haw and I put myself in tailspins repeatedly.

My face basically always.

But when you worry as often as I do, sometimes your worrying gets interrupted.  Someone around might ask you a question.  You might get a text message.  You might even just stumble on another worry and go off on a different anxiety tangent for awhile.

I can't even tell you how many times I have forgotten what I am worrying about.

Now, for anyone who has struggled with an intrusive thought trap, that at first sounds like a dream.  

You forgot the worry?  What a relief!  Now you can move on!

Ha.  Hahahahaha.

I wish it could be that simple. 

But alas, when I forget it turns into a different kind of torment.  My OCD and anxiety is very physical as well as mental.  When I'm anxious, I feel it in the back of my throat and in my chest - a clenching telling me, "Something is wrong."  

The tragedy is that I will try to remember what that something is, and if I can't remember, then I start to worry that I can't remember.  

What if it was important?  What if it was something bad?  What if it was urgent? What if I was supposed to do something about whatever it was? 

The other sick part is that when I can't manage to recall what that original worry is, instead of going away, the anxiety will just finds another worry.  It's a lose-lose scenario where I either remember what was originally upsetting me or find another reason to be upset.  

On the bright side, the forgetting proves that my mind can move away from the disturbing concerns that sometimes seem inescapable.  Plus, the physical manifestations of anxiety can be worked on.  In past sessions, my therapist and I have talked about exercises as simple as deep breathing that can help alleviate the physical symptoms of an anxious mind.  As always, just one step at a time.  

Now if I can just forget when I forget...

The Reality of 13 Going on 30

When the Jennifer Garner movie 13 Going On 30 came out in 2004, I was 15.  The premise

Me at 13 at my Bat Mitzvah.

was fun and fantastical:  A 13-year-old girl wakes up one day as her 30-year-old self as if by magic.  She then has to figure out how to be 30.  Many jokes stem from her floundering about, feeling like she has no idea what she's doing.

Seeing it in theaters as a teenager was fun, but rewatching it recently, it didn't seem like such a fantasy movie after all.  I turn 30 on Saturday, and it kind of feels like I was a teenager yesterday, blinked and woke up like this.

Looking back on the past seventeen years, so many things are still the same...

• I'm still struggling with many of the same obsessive fears.
• I still want to turn to an adult for answers to like 95% of questions.
• I still doubt myself and feel like I have no idea what I'm doing basically ever.
• I still have not mastered eyeliner.

I don't feel like an adult.  I'm about to be 30... shouldn't I feel more together?  Shouldn't I feel more competent?  

At the same time, when I talked with some 20-year-olds the other day, I felt 500 years old.  It feels like being stuck in-between where I was and where I should be.

Time feels like it's racing faster than I can keep up.  My mom tells me to "make the most of what your life brings" and "enjoy your life," but this is sometimes easier said than done.  I'm an emotional mess a lot of the time now!  I see the path to sentimental old lady: each day I feel one step closer to becoming my great grandmother who cried at greeting cards.  

Getting older can make anyone existential, and with OCD and anxiety it can be especially hard not to focus on fear until it poisons the happy moments (Jennifer Scinto writes beautifully about this in an article for The Mighty).  As far as goals for my 30s, I hope to find more inner peace.  I hope to do a better job of actually applying suggestions from therapy even when it's hard or daunting.  I hope to spend less time worrying and complaining and more time finding joy in my day-to-day.  

Sometimes, when I think about my birthday, I feel overwhelmed and like crying.  But, as my dad has reminded me, getting older certainly beats the alternative.  For anyone freaking out about aging, I feel the most empowered when I embrace it with pride.  The years of life experience have value and there's no need to shy away from them.

I've been putting off starting the gratitude journal my therapist recommended, but I know there is so much to be grateful for: I have a husband who understands and supports me.  I have wonderful family and friends.  Even if I can no longer drink without a hangover, I can still walk and swim and play with my puppies.  So this Saturday, I hope to put on a dress and my birthday crown and smile.  

8 Reasons I Cried During Disney's Aladdin

Cue the water works.

I have been transitioning off of my OCD/anxiety medication, and to say it has been an emotional roller coaster would be an understatement.  

I experience waves of feelings with such intensity that it overwhelms me.  Unfortunately, a lot of these feelings are also negative - from anger to profound sadness.

Well, I saw the live action remake of Disney's Aladdin while in the middle of this transition period.  The original Disney classic came out in 1992 when I was three and was very important to me as a little girl.  With all the nostalgia about to ensue, the situation was ripe for a breakdown.

And the breakdown was real.  So much crying.  Overt sobs at one point.  Don't get me wrong, the movie was beautiful, but I was also in a state.  Nostalgia is hard, but it's even harder without medicine.  

Please note the SPOILER ALERT here if somehow you are not familiar with the Aladdin story.  (Also, please go and watch the classic cartoon immediately and then go see the remake!)  Here, for your viewing pleasure, I've compiled a list of reasons that an emotionally unstable, anxious, unmedicated 29-year-old woman cried during a Disney movie remake.

Pre-Film 

1.  The Music in the Lion King Trailer  (Hans Zimmer got me.  Also just the idea of Mufasa.)

2.  The Walt Disney World Commercial (Being at Disney was so wonderful.  My family is the best family.  What if I don't get to go again?  When did I get so old?  I don't want to get old.  I don't want my parents to get old.)

The Film Begins

3.  The start of "Friend Like Me" (Will Smith is trying his best but Robin Williams will never be matched.  And now he's gone and that light in the world won't be repeated.)

4.  Jasmine is perfect looking.  (How can someone be that beautiful?  I'm getting old.  Why am I not that beautiful?  All I wanted when I was little was to be Jasmine.  Imagine what an honor to actually play that dream role.)

5.  Aladdin pretends to fall off the balcony on to the magic carpet.  ("A Whole New World" is about to be sung.  I'm not ready.)

6.  "A Whole New World"  (I am not ready. Overtly sobbing through the whole thing and barely seeing any of the actual footage.)

7.  Aladdin sets the genie free. (What a nice thing to do.  Imagine what it would it feel like to be free for the first time.)

8.  Aladdin and Jasmine get married. (They're in love and it's a wedding and it's beautiful.)

I realized stepping away from it that most of these are ridiculous tear triggers that my anxiety and emotions just took off with (Obviously not Mufasa.  Always cry for Mufasa).  I hope that this is a temporary issue and that things will balance out.  

For now, I am lucky that I have a family of saints who are able to find humor in the situation and take it in stride.  Sitting between my husband and my mom in that movie theatre, I had support on both sides and hands to hold - and they only laughed at me a little.  Sometimes, when the emotions get too intense, that's the triumph: we just have to laugh.

The Never Ending To Do List

Puppy Photos & Waffle Magnets > To Do Lists

I know that everyone has to go through the same realization, but it still shocks me at almost 30 years old how obnoxiously hard it is to be an adult.

As a married woman with a house and two puppies, it seems like as soon as I fix one problem another starts... that is if I can even fix the first problem at all.  

Example:  Today, I tried to submit a receipt to insurance, but I couldn't because I changed my last name when I got married and they have my old last name.  When I asked the health insurance company originally about this, they said I had to go through my husband's employer to change it with them.  Except I did weeks ago... My husband wrote to HR and received a response that it was handled.  Regardless, nothing has changed and I can't turn in over $1,000 in receipts for therapy.  

After another frustrating phone call on that topic, I discovered my oven was broken and that's the second major appliance in just as many weeks (we just got a new fridge installed Thursday).  

Meanwhile, as I'm trying to juggle these things the dogs are fighting each other.  They are almost nine months old and have reached a stage where they want to eat and destroy everything they love: their reign of terror knows no limits, and they fluctuate between snuggle buggle and demon sometimes minute to minute.  I love them so much and I feel guilt and self-loathing every time I get angry and yell at them for misbehaving, but I also get frustrated as they continue not to listen and inevitably wind up yelling again, and so the cycle goes on and on until I can get a trainer's help.

The challenges feel constant and overwhelming, and with anxiety they can be especially hard to process.  The way my mind is set up, I always want to have the tasks that are weighing on me checked off.  I want what is worrying me to be accomplished and handled.  

High school and college were in many ways set up beautifully for this mindset.  Assignments were clearly defined and spelled out.  A class had due dates and a set time period.  When the class was over, it was over.  I could work hard and succeed... and I was even given a letter grade at the end to clearly indicate that I had in fact succeeded! Even if a class had a lot of work to do, there was always a light at the end of the tunnel.  

With adult professional work and house work, it is completely different.  There is no end.  At work, when one project is over... there is another one in the wings. Then another.  There won't be a final anytime soon.

Sometimes the assignments don't even have clear instructions.  And there are roadblocks at every turn... a contractor who won't return a call, unexpected electrical issues that stall a project, a company's buggy website.   

The small tasks pile up and sometimes it seems like everything is designed to keep you from being efficient. Seriously, if I have to talk on the phone with one more customer service robot, I'm worried I'm going to snap.

I guess I'm still struggling to find balance.  I used to relax when the work was done, but now I need to find a way to relax even when the work is still there.

I'm still learning and I know I need to stay hopeful.  I have a lot of great support from the people that love me, and I know plenty of people successfully navigate adulthood every day and enjoy the ride.  Still, if anyone has tips for balancing sanity with the never ending to do list, I'm very open to suggestions.

Ninety Percent Sure

Read: Risk VERY VERY Small

A few weeks ago, after so much waiting, a number of anxious phone calls and a spout of me crying in a small hospital room, we finally got the results of the pre-pregnancy genetics tests back.

On the test that screened for over 200 potential genetic problems, we discovered that Nathan and I are each carriers for one disease.  However, since it is not the same disease, the risk that we have an infected child is 1/4,400 (0.0227%) for one of the diseases and t 1/3,520 (0.0284%) for the other. 

As for the other genetic test for Nathan, the results came back with a 90% chance that he doesn't have the disease.  Combined with the fact that he doesn't meet the clinical criteria, the doctor felt pretty confident that he does not have it.  However, he did say that they could be even more sure if they compared the results with a blood test from a family member.

Now, this is where I feel I really had a triumph over my OCD tendencies.  Something I struggle with that is very common with OCD and anxiety is that I find it very hard to live with any doubt.  OCD feeds on doubt, and so you want to be 100% sure of everything.  This can lead to all sorts of unhealthy behaviors from checking and rechecking to unhealthily obsessing over horrible possibilities that have only a small remote chance of either being true or becoming true.

You have a feeling that somehow you will be on the wrong side of statistics.  If there's a 97% chance that something is good, it is very easy for someone with OCD like mine to focus on that lingering 3%.  The most ridiculous part is that this fixation on small chances and the feeling that the unlikely occurrence is sure to happen only acts up when considering improbable bad outcomes.  

For example, if someone told me there was a 2% chance I would die tomorrow, I would be very uncomfortable.  I would spend the whole day thinking I was going to hit that 2%.  I wouldn't feel any safety in the 98% chance that I would be okay - I would feel doomed.  But, if it was reversed and someone told me there was a 98% chance I would to die tomorrow, I wouldn't focus on the 2% chance of survival and feel a lot of hope.  It isn't about a misunderstanding of how numbers or chances work as much as constantly fearing the worst while also expecting it as unavoidable.

But when we got these results, I was satisfied.   The odds from the overall couples' screening were clearly astronomically small, but I even feel good about the 90% assurance on Nate's major test.  I heard the results and didn't want to keep digging.

I know we can never with 100% certainty prove the negative.  Even comparing the results to a family member's results, the doctor admits that they still could not make a 100% guarantee.  The truth is that seeking any assurance higher than 90% won't really make me feel any safer.  Starting a family means accepting a lot more risk in my life.  I know by now that the OCD fears and worries aren't going to magically disappear, but accepting these results and feeling good about moving forward was a step in the right direction.  

So, here's to moving forward even when you're only 90% sure.  Sometimes, that's the best thing to do. :)