The Waiting Game

Is it February yet?

Most people don't like to wait.  In our instant-almost-everything society, we want answers, results, and gratification, and we want them yesterday.

That said, those of us with anxiety disorders are notoriously bad waiters.  We were bad even before the internet had immediate answers.  We go negative naturally.  If you give me a situation with multiple outcomes, I am assuming the worst one until I have heard otherwise.  I may even invent a new possibility for failure or disaster that hasn't even been considered before.  Watch me.

None of this works in my favor as Nate and I are having some pre-pregnancy tests done.  My mom's side is of Ashkenazi Jewish heritage, so doctors recommend checking for certain genetic diseases, and my husband also has a serious genetic disorder in his family.

So we made an appointment with a genetic counselor.  I felt sick leading up to it, terrified of what we might discover.  Unfortunately, the initial appointment was basically a nonevent with no answers.  Instead, we each had a blood test to screen for a number of possible genetic problems that could be passed on to future offspring. 

The blood was sent to a lab and the real waiting started: two to three weeks for a call from the doctor to see if we hit an unlucky combo.  Knowing my anxiety levels, we considered not even doing the general screening because I can read a 2% chance as almost a certainty. However, we wanted to make sure we knew the risks we would be taking.  A few weeks of worrying would hopefully assuage some of the worst fears.  

A few weeks seemed bad enough, but the counselor also told us that the test could not screen for the issue in Nate's family.  For that, we would need to wait until March to get an appointment with a geneticist.  I have been concerned about this issue for years and thought we were finally going to get a real sense of what we were facing.  Now they wanted us to wait months longer? 

By some miracle there was a cancellation and we were able to see the geneticist last week instead.  Of course there were no answers there either; instead, we needed another blood test and the results of that test could take 6 weeks.  Those results could give us a definitive answer, but they could also be inconclusive, in which case we would need to get a family member of Nate's blood tested and wait even more.  

To top it off, the geneticist told us that they would only call if it was positive.  I explained that I have anxiety and would be waiting for a call and assuming I missed it.  He said to make an appointment in 4 months and we could go over the results... What kind of cruel joke is this?  Wait four months for the results of a test you are getting in six weeks?  

This was a test that could have ramifications for my husband's health and for our future family.  I want to know what we're facing so we can make a plan for how to move forward.  

Positive results won't change my love for him.  If I had known his results were positive before, I still would have married him.  That said, I want to know so we can take care of his health.  I want to know so we can have a sense of potential future issues.  Limbo - waiting and not knowing - is the worst because you have all the dread and no ability to control or plan.  God can only grant me the serenity to accept the things I cannot change if I learn what I cannot change.

I asked for alternative ways to get the test results.  The doctor suggested that he would memorize our name and make sure to call us either way.  I asked if I could call to check the results after 6 weeks.  I don't think he understood how upset I was until I started crying.

I know that I am basically a professional worrier, but I couldn't help but wonder: Are average people really just that chill?  Are most people willing to sit around not knowing if they or their loved ones have major disorders for months longer than they have to?

The days since the test have been interesting.  I am mostly impressed by how often I am not thinking about it.  The human brain (even the anxious one) is amazing in its ability to distract itself.  With my OCD, I can ruminate and worry and be hyper-focused on the negative and on fear.  However, even at my worst, my brain was still always moving.  Even my worries move around.  This week they have jumped from the test to groceries to taxes.

The truth is that this experience will be a great test of how I can handle parenting.  There are no assurances when you decide to have a baby.  There is no way to avoid all risk and ensure that your baby will be healthy.  You have to learn to be patient and to wait with some sense of grace and optimism.  If I can learn to handle these next few weeks, maybe I'll be okay handling 9 months, and then 18 years, and then a lifetime.  

For now, all I can do is take it one day at a time.